Sam Berns

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Sam Berns
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Sam Berns at an October 2013 Washington, D.C., venue via TEDx MidAtlantic
Born
Sampson Gordon Berns

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Providence, Rhode Island, U.S.
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Foxborough, Massachusetts, U.S.
Cause of death
Complications from progeria
EducationFoxborough High School
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Known forHBO documentary on progeria, spreading progeria awareness
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Sampson Gordon Berns (October 23, 1996 – January 10, 2014) was an American activist with progeria, an extremely rare and fatal disease that causes the body to age rapidly. Berns helped raise awareness about the disease,[1][2] and he was the subject of the HBO documentary Life According to Sam, which was first screened in January 2013.

Progeria Research Foundation

His parents, Scott Berns and Leslie Gordon, both pediatricians, received their son's diagnosis when he was less than two years old.[3] Roughly a year later, in an effort to increase awareness of the condition, they established the Progeria Research Foundation to promote research into the underlying causes of and possible treatments for the disease.[4] Moreover, they offer resources for the support of those with progeria and their families.[1][5][6]

File:Parents-of-sam-berns.png
Scott Berns and Leslie Gordon, the parents of Sam, at the Peabody Award ceremony

Honors

Boston Bruins

On November 9, 2013, at a home game for the Boston Bruins, Berns helped host Progeria Awareness Night, sat with the team as an assistant equipment manager, and dropped the ceremonial first puck for that night's game against the Toronto Maple Leafs. Berns and Zdeno Chára, the Bruins captain, had been strong friends since 2006, when Berns attended a Bruins game and met Chára afterwards. Chára had scored in that game and Berns blurted out "You're the hero!" Chára responded: "No, no, you're my hero, our hero."[7][8] On January 14, 2014, the Bruins honored Berns with a moment of silence and a video tribute before the start of the game.[9]

New England Patriots

Berns was to be an honorary captain when the New England Patriots hosted the Indianapolis Colts in a divisional playoff game on January 11, 2014; however, he died on January 10, the evening before the game.[10][11] Patriots Chairman and CEO Robert Kraft issued a statement on the news of the passing of Berns.[12] Kraft said: "I loved Sam Berns and am richer for having known him."[13][14]

TED Talk, Sam Berns

"My Philosophy for a Happy Life" was recorded in 2013 by Berns at the TEDxMidAtlantic,[15] and has been viewed over 54 million times on YouTube and has the most comments of any TEDTalk at over 51,000 (as of August 2025) and 1.1 million likes.[16][17][18]

Life According to Sam

Life According to Sam is a 2013 documentary film based on the life of Berns and has been shown at film festivals, including Sundance, and it was broadcast on HBO in October. The Academy of Motion Picture Arts and Sciences said it is among 15 documentaries considered for Oscar nominations.[19][20][21]

See also

References

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  1. ^ a b Page Module:Citation/CS1/styles.css has no content.Fox, Margalit (January 13, 2014). "Sam Berns, 17, Public Face of a Rare Illness, Is Dead". The New York Times. Retrieved January 14, 2014.
  2. ^ Page Module:Citation/CS1/styles.css has no content."The Short, Remarkable Life of Sam Berns Turned Spotlight on Progeria". news.nationalgeographic.com. Archived from the original on January 15, 2014. Retrieved January 14, 2014.
  3. ^ Page Module:Citation/CS1/styles.css has no content."Progeria Research Foundation – Our Story". Progeria Research Foundation. Retrieved January 15, 2014.
  4. ^ Page Module:Citation/CS1/styles.css has no content."Progeria Research Foundation – Quick Facts". Progeria Research Foundation. Retrieved January 15, 2014.
  5. ^ Page Module:Citation/CS1/styles.css has no content.Berman, Michele R. (October 16, 2013). "Life According To Sam Berns". MedPage Today. Retrieved January 14, 2014.
  6. ^ Page Module:Citation/CS1/styles.css has no content.Titunik, Vera (October 2, 2012). "Revisiting Sam Berns". The New York Times Magazine. Archived from the original on December 29, 2014. Retrieved January 14, 2014.
  7. ^ Page Module:Citation/CS1/styles.css has no content."Sam Berns, public face of progeria, to be honored by Bruins". Sporting News. January 14, 2014. Archived from the original on September 24, 2015. Retrieved November 25, 2014.
  8. ^ Page Module:Citation/CS1/styles.css has no content."Remembering Sam- Boston Bruins". January 14, 2014. Retrieved November 25, 2014.
  9. ^ Page Module:Citation/CS1/styles.css has no content."Remembering Sam". nhl.com.
  10. ^ Page Module:Citation/CS1/styles.css has no content.Steve Buckley (January 12, 2014). "Robert Kraft: I fell in love with Sam Berns". bostonherald.com.
  11. ^ Page Module:Citation/CS1/styles.css has no content."Sam G. Berns's Obituary on New York Times". New York Times. Retrieved June 29, 2017.
  12. ^ Page Module:Citation/CS1/styles.css has no content."Statement from Robert Kraft on the passing of Sam Berns". New England Patriots. Archived from the original on January 12, 2014.
  13. ^ Page Module:Citation/CS1/styles.css has no content.Sumner, Ben. "Patriots, Bruins pay tribute to Foxboro teen who died of rare disease". Washington Post.
  14. ^ Page Module:Citation/CS1/styles.css has no content."Kraft on Berns: I am Richer for Having Known Him". Foxborough, MA Patch. January 11, 2014.
  15. ^ Page Module:Citation/CS1/styles.css has no content."TEDxMidAtlantic". tedxmidatlantic.com. Retrieved June 29, 2017.
  16. ^ Page Module:Citation/CS1/styles.css has no content.TEDx Talks (December 13, 2013). "My philosophy for a happy life – Sam Berns – TEDxMidAtlantic". Retrieved June 29, 2017 – via YouTube.
  17. ^ Page Module:Citation/CS1/styles.css has no content.Fox, Margalit (January 13, 2014). "Sam Berns, 17, Public Face of a Rare Illness, Is Dead". The New York Times. Retrieved June 29, 2017.
  18. ^ Page Module:Citation/CS1/styles.css has no content.Henig, Robin Marantz (January 13, 2014). "The Short, Exuberant Life of Sam Berns". The 6th Floor Blog. Retrieved June 29, 2017.
  19. ^ Page Module:Citation/CS1/styles.css has no content."Life According to Sam". Retrieved June 29, 2017.
  20. ^ Page Module:Citation/CS1/styles.css has no content."Life According to Sam (2013)". IMDb. Retrieved June 29, 2017.
  21. ^ Page Module:Citation/CS1/styles.css has no content.Robin Marantz Henig (January 30, 2005). "Racing With Sam". The New York Times. Retrieved June 30, 2017.

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